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Mom's Memorial Blog

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Buffy on High Speed

Kat and I are officially engaged!

Buffy's First Swimming Pool

Buffy's First Swimming Pool

Buffy and The Emergency Phone

Happy!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Finally happy! Kat and I are sudo engaged and are agreed on the natural method of spawning.

Maze of feelings

I'm still working through my feelings from last night. I can't give up but as you all know, sometimes it's hard. The previous post was written while I was still sad and angry. Sometimes I just don't know what to do with everything that I'm feeling.

Maybe faith just isn't worth it!

Maybe having a family just isn't meant for everyone.

Maybe it's time for a little faith

Because Kat has Huntington's disease, we have been looking into alternatives to having children and starting a family. The odds are 50/50 that our biological children would have Huntington's. Because of the limited time that she has before the earliest onset of the symptoms, adoption isn't looking like a viable option. We have looked into other options and were pursuing an alternative that may have worked out well but, it appears to have fallen through.

Kat was talking to Spencer and Crystal tonight and came back to talk with me. At this point in life, we are discussing having children the normal fun way and just leaving things to fate/faith. There is a 50/50 chance that our children would have Huntington's and a 50/50 chance for Osteogenesis Imperfecta.

Truly one of the saddest days

My friends Crystal and Spencer lost their wonderful baby Sage today. I can't begin to imagine what they are going through and I'm not going to try. I know how much I love them all and how much joy Sage brought to them and to those around him. I remember holding him and how happy he made me. I will never forget him. He is with the angels now and will forever watch over us.

Foo Dog

Kat painted some beautiful Foo Dogs in the guest bathroom. She hasn't decided if they are fully complete yet but here they are.

Renaissance Fair 2009

This years Renaissance fair was fun. We went for my birthday today. We saw two shows and spent the rest of the time exploring the shops and people watching. My mom bought me a beautiful white dragon incense burner and Kat bought me a sterling silver spinning ring to replace the one I lost in the car accident. I bought Kat a really pretty Japanese Parasol. I have made getting a kiss from Twig my mission and as such, I tried to get a kiss this year for my birthday. She's very sly and I only got a glass gem but she smiled and as cute as she is, it was enough. I will continue to try to get an actual kiss until my dying breath though. Buffy as usual got most of the attention. Every few feet through out the entire day, I heard "oh, look how cute. She has boots." People constantly stopped me to ask to pet her. After 6 hours pushing through rock and dirt, my arms and shoulders are killing me.

Oh! Forgot to mention that Kat tried the rock wall. She gave it her all but, fell back to earth before reaching the top. Part of the problem was that she has long nails and couldn't get a good grip on some of the rocks. For the picture ordering for Kat and the wall of doom, start from the bottom.

Catching up

Mom is doing much better. She seems happier and is asking for food and water. She's more talkative and expresses her opinions more frequently. Things are definitely looking up with regards to mom.

Kat has started work as mom's caregiver and is really good at it. She's naturally compassionate and easy to talk to which makes for a perfect caregiver. She's able to take care of my mom's personal needs without my mom knowing which keeps both my mom and Kat happy which, leads to me being happy.

So, to summarize, Kat is back to work doing something that makes a difference and my mom is on the way to getting better which is a good start to some actual happiness.

Having my mom live with us is still taking some getting used to but, it's getting better.

We found out that the bank took ownership of the house because no one bought it at auction. This means that if my dad hadn't screwed us over by not getting us the location and time of the auction, my sister and I could have bought the house for the cost of the tax lien which was under $2000. We then could have sold it and paid off both of our debts and bought mom a small house out here for when she gets better. It's aggravating but, things could be worse so I'm still very grateful.

Daily Log 02/22/2008

I drove my truck for the first time since the accident. It felt nice. My left shoulder and right side are very sore from lifting my wheelchair and my legs are mostly just tired but, I did it. The anxiety is still pretty distressing. My heart starts racing every time I see someone start to make a left or right turn in front of me. I'm going to start riding my exercise bike tomorrow to begin strengthening my legs. My shoulder and ribs will start feeling better over time the more I use them.

Update

Things with my mom are slowly getting better. She's finally starting to open up and believe that her opinion and wants are important. For the first time she asked for something to eat and drink. It may not seem like much but, it's huge. Buffy is making a huge difference. I'm constantly having to fight mom for Buffy. Not much of a fight as Buffy is my baby but, mom is sneaky and is constantly calling Buffy up onto her bed which, can potentially negate some of her training so I'm having to be stricter than I like.

Kat is going Monday to sign up to work for a Care Giving company called Serao. Once she's signed up and trained, she'll take over my mom's care giving. It's going to solve her job delima and help her feel better because she'll be doing something worthwhile. She is a natural. I have heard Kat and my mom talk and Kat really opens her up. She's been reading Memoirs of a Geisha to my mom and my mom is really getting into it.

They locked up my mom's house yesterday and had the trash people over this morning to trash everything. We got almost all of her stuff out but, thanks to my sister Aimee's
unreliability, the second piano has probably been trashed. Such a waste.

Daily Log 02/14/2009 - Valentines Day

I cooked Kat and my mom a wonderful dinner and I say wonderful because I cooked it. For the entree, I made Stuffed Portobello Mushrooms stuffed with light cream cheese, roasted red pepper hummus, and green bell peppers. It was fantastic, everyone loved it. http://www.azcentral.com/style/hfe/food/simplemeals/articles/dt-fresh0114.html#commentform

I got Kat something else but, I'm not going to talk about it as this is public ;o).

She surprised me or rather tried to surprise me by laying out rose peddles all over the bedroom floor along with a dozen or so cards of varying sizes. Each card was hand drawn with a depiction of something memorable that occurred during the year. She is so thoughtful and creative. I can't believe how lucky I am to get to keep her. I say tried to surprise me because she forgot to close the bedroom doors and I was passing by and caught her.